Objective To gain insight into the experience of disease communication among couples with stroke. Methods A descriptive phenomenological approach was conducted and a purposive sampling method was used to select 19 couples with stroke from August 2022 to March 2023 in the Department of Neurology of a tertiary hospital in Henan Province for semi-structured interviews. Data were analyzed by the Colaizzi method. Results A total of 2 themes and 8 sub-themes were extracted. Constructive disease communication included open communication of treatment information，timely communication of changes in symptoms，active communication of secondary prevention，and proactive communication of negative emotions. Negative disease communication included avoidance of communication，communication conflict，ineffective communication，and communication concealment. Conclusion Couples with stroke experienced both constructive and negative disease communication. Healthcare professionals should develop targeted interventions to improve disease communication，enhance the ability of couples to make decisions together，and reduce their negative emotions.
Objective To systematically evaluate the caring experience of family caregivers of aged patients with multi-morbidity, and to provide a reference for developing individualized support strategies for family caregivers of multi-morbidity patients. Methods Qualitative studies on the caring experience of family caregivers were searched in electronic databases, including Web of Science, PubMed, Embase, the Cochrane Library, CINAHL, CNKI, WanFang, VIP database, and CBM Database. The retrieval time was from the establishment of the databases to August 2022. The literature was evaluated using the Australian JBI Quality Evaluation Criteria for Qualitative Research in Evidence-based Health Care Centres（2016）, and the results were consolidated using an aggregative integration approach. Results A total of 10 studies were included, and 54 clear research results were extracted. The similar research results were summarized into 11 new categories, and 3 integrated results were synthesized. The caring experience has multiple effects on the caregiver’s mind, body and life；caregivers face multiple challenges；caregivers respond positively to maintain a normal life. Conclusion Medical staff should attach importance to the caring experience of family caregivers of elderly patients with multi-morbidity, promote and construct a caregiver support security system, develop personalized support strategies, meet the needs of caregivers, and improve their quality of care and quality of life.
There are problems of disease communication between couples with cancer. The spousal disease communication interventions play an important role in improving disease communication ability，intimacy and negative emotions in spouses with cancer. This paper reviewed the current status，influencing factors，interventions and effects of disease communication in couples with cancer. This paper aims to provide a reference for developing an intervention for disease communication in spouses with cancer.
This article reviews the composition of a risk communication team,nurse-led risk communication strategies and communication process for high-risk groups of cardiovascular disease in foreign countries,in order to provide references for nurses to carry out theoretical research and practical work of risk communication for these groups in China.
Chronic diseases become a major problem that threatens the health of the population and affects national economy. Studies have shown that patients with high levels of self-advocacy are able to gather medical information and access external support,so that they can take the initiative to choose care and treatment that meets their needs,which enables them to better manage their diseases. While some progress has been made overseas in the study of self-advocacy for people with chronic diseases,research in this area still remains limited in China. Therefore,this paper provides an overview of the assessment tools,influencing factors and interventions of self-advocacy in people with chronic diseases,in order to offer a useful reference for the development of self-advocacy in China.
Objective To develop and test the reliability and validity of the Behavioral Decision-making Scale for stroke patients. Methods The conceptual structure was defined based on theory analysis. The literature review and semi-structured interview were conducted to build the items pool. The initial scale was formed after expert consultations;the cognitive interview was conducted to test and adjust the items. Then,327 stroke patients were conveniently investigated from February to October 2020,and the data was used to test the reliability and validity of the scale. Results The scale consisted of 30 items,4 dimensions,with a cumulative variance contribution of 64.408%. The 4 dimensions were named as “behavioral change motivation”,“behavioral change intention”,“decision factors”,and “decision balance”. The content validity index of the total scale was 0.800-1.000;the Cronbach’s alpha coefficient was 0.934,the half reliability was 0.797,and the 2-week retest reliability was 0.833. Conclusion The Behavior Decision-making Scale has good reliability and validity,and it can be used as a valid tool to assess health behavior decision making in stroke patients.
Objective To systematically evaluate the qualitative research about experience of patients and caregivers on self-care,so as to provide references for better developing and improving stroke self-care intervention programs and promoting physical and mental health of stroke survivors and caregivers. Methods PubMed,Web of Science,Embase,PsycINFO,CINAHL,Cochrane Library,Joanna Briggs Institute（JBI）,CNKI,Wanfang database and other Chinese and English databases were searched by computer to screen qualitative studies related to stroke survivors / caregivers and self-care. The retrieval time was from the establishment of the databases to June 2021. Joanna Briggs Institute evidence-based health care center quality evaluation tool was used to evaluate the methodological quality of the included literature,and the results were integrated by meta-integration method. Results A total of 12 studies were included,and 46 clear research results were extracted. The similar research results were summarized into 11 new categories,and 3 integrated results were synthesized：understanding of the concept,significance and influencing factors of self-care by stroke survivors and caregivers;perceptions of stroke survivors and caregivers on skills and strategies related to self-care;views of stroke survivors and caregivers on the acceptability and sustainability of self-care support. Conclusion Views and expectations of stroke survivors and caregivers on self-care are important. In the future,dyadic self-care support programs for stroke survivors and caregivers can be carried out,and the advantages of digital technology and platforms can be used to enrich the forms and contents of self-care interventions and form more targeted self-care interventions.
Objective To gain insights into the perception of the disease experience and recurrence risk from the perspective of patients who experienced first-ever and recurrent stroke. Methods A phenomenological approach was conducted and a total of 19 stroke survivors were enrolled for semi-structural in-depth interviews. Colaizzi method was used to analyze the data. Results The abstraction process generated 3 categories according to the number of recurrences,which showed different characteristics. First-ever stroke survivors could identify anomalies but lacked of professional information resources;they could actively seek treatment with awareness of benefits of timely hospitalization;they were overoptimistic towards prognosis and easily overlooked the risk of recurrence. For the patients with a second stroke,adequate information about warning signs was still needed;they perceived the severity of recurrent stroke and aroused self-reproach and self-examination;susceptibility of recurrence,sense of powerlessness and the loss of control were experienced. Regarding to patients with multiple recurrences,their social participation ability significantly decreased;they perceived no visible benefits of behavioral changes;they started to focus on life and death with positive or negative acceptance of recurrence. Conclusion Despite differences of patients,inadequate awareness of recurrence risks is a common phenomenon. It is recommended to develop a classified health guidance according to patients’ recurrence times,to implement risk communication education to promote disease awareness and recurrent risk perception of stroke survivors.
Objective To systematically review the illness experience of patients with post-stroke urinary incontinence（PSUI） and provide references for healthcare workers to carry out precision nursing intervention. Methods We searched databases including the Cochrane Library,PubMed,EMbase,CINAHL,Web of Science,PsyINFO,CBM,CNKI and Wanfang from inception to May 2019 to collect qualitative studies on the illness experience of PSUI patients. The quality of included studies was evaluated by JBI Critical Appraisal Tool for qualitative studies. Results A total of 5 studies were included,with 34 complete research findings grouped into 7 categories by their similarities. Two integrated findings were synthesized：patients with PSUI can have severe negative emotion and interpersonal tension with limited daily activities;patients with PSUI have poor self-management due to communication barriers and lack of information,therefore,they are longing for family and social support. Conclusion Healthcare professionals should pay more attention to the illness experience and information needs of patients with PSUI,and provide psychological counseling,medical support and humanistic care,in order to help patients to improve their confidence in coping with the disease and improve theirquality of life.
Objective To systematically review and synthesize qualitative studies on the effects of environmental factors on functional activities and social participation of patients with stroke at home,in order to provide evidence for community health workers to improve home environment of stroke patients and to enhance their functional activities and social participation. Methods We searched databases including PubMed,Embase,Web of Science,PsycINFO,CINAHL,CBM and CNKI from inception to January 2019,to collect qualitative studies exploring environmental factors affecting stroke patients’ activities and participation. The quality of included studies was evaluated according to JBI Critical Appraisal Tool for qualitative studies in Australia. Meta-synthesis was used to integrate results. Results A total of 12 studies were included,and 34 findings were grouped according to their similarities to form 9 categories. Integration results 1:obstacles in living environment directly restricted patients’ activities and social participation;integration results 2:social support was crucial;integration results 3:the existing transportation services and health care services were difficult to meet patients’ needs. Conclusion Barrier-free environment plays an important role in the rehabilitation process of stroke patients at home. Government,community medical and health institutions and other relevant personnel should pay full attention to the impact of environmental factors on stroke patients at home,and help them establish a good social support network. Community health care services should be improved,and supportive organizations for stroke patients should be established to meet the needs of stroke patients at home.
